[ View the story "ALS #IceBucketChallenge drenches social media" on Storify] ALS #IceBucketChallenge drenches social media The viral campaign has raised millions for the rare disease, but critics say the challenge is just another form of slacktivism.
The Stream· Wed, Aug 27 2014 15:47:32
With more than 4 million
on Twitter and countless online videos since July, the ALS
Ice Bucket Challenge
has been one of the hottest social trends of the summer. However, despite its popularity and intent to raise awareness and funding for
Amyotrophic lateral sclerosis
(ALS), some critics have accused the phenomenon of being
, and an
of online "slacktivism".
A relatively rare, sometimes
approximately 450,000 people worldwide, ALS causes patients to progressively lose control of muscle movement.
What is ALS?projectalsorg
ALS is also known as "Lou Gehrig's Disease", named for the former New York Yankees
who died from the disease in 1941.
MLB: 75th anniversary of Lou Gehrig's speechalstdi
Although details of the Ice Bucket Challenge vary slightly, the premise is simple: Participants have 24 hours to film themselves dumping ice-cold water on their heads, or donate money to ALS-related charities. Although the exact origin of the challenge is
, approximately $88 million has been
Screenshot of my #IceBucketChallenge video. 5,600 people are diagnosed every year w/ #ALS. Donate for a good cause.
Did the #ALSIceBucketChallenge with @EmmaGonnella! I nominate @AngieJo09670962 @bexxyd & @Witsend02! Please donate
Bill Gates ALS Ice Bucket Challengethegatesnotes
I do hope the #IceBucketChallenge continues to raise cash for MND charities rather than just raising celebrities profiles. Remember to give!Jake Humphrey
the challenge is wasting water when so many people around the globe have problems accessing it.
This #IceBucketChallenge is annoying me. A waste of water! We should all just donate money instead & #savewater.Melissa
I was about to do the #IceBucketChallenge but I realized that water is even more important for lots of people, and we shouldn't waste it.Lord Faisal
In light of this accusation, actor Matt Damon - whose
works to bring clean water to communities in need -
toilet water to raise awareness of water sanitation issues around the world.
Matt Damon Takes the ALSA Ice Bucket Challenge!water
Other celebrities, like actress Pamela Anderson, have
participation, citing ethical concerns about the way in which ALS research can be conducted.
Sorry - I can't bring myself to do your Ice ...facebook.com
Anthony Carbajal, 27, was
with ALS in January. He says the disease was rarely discussed prior to the trend's popularity. In the video below, he responds to criticisms of the challenge.
ALS ICE BUCKET CHALLENGE - UNCENSORED & SEXY?acarbajal945
“I promise your news feed will go back to cat videos and ‘Let It Go’ covers, but right now, the ALS community has the main spotlight. And for once in my entire life, I’ve seen it in the forefront.”losangelesregister.com
Like Damon, some have modified the challenge to raise awareness about other issues. University student Maysam Yusef and Palestinian comedian Mohammed Darwaza, for example,
to bring attention to the ongoing crisis in Gaza.
Below, Palestinian journalist Ayman Al-Aloul demonstrates the challenge.
أيمن العالول دلو الركامI3Qfq5cDI-wqUWzADH3w7A
Raed is a Palestinian student in
Malaysia do the Rubble Bucket Challenge #RubbleBucketChallenge #Gaza
No water, no electricity for ice in #gaza, #RubbleBucketChallengeHemedi Tottenham
#GazaUnderAttack You have got to hand it to the Palestinians. In the midst of this nightmare, they invent #RubbleBucketChallenge!For Fox Sake
Similarly, journalist Manju Latha Kalanidihi
in India, where access to clean water is
. Instead of dumping water, the challenge encourages participants to donate a bag or bowl of rice to a person in need.
“The idea of dunking oneself in icy cold water, shrieking in horror and then uploading the bizarre video felt preposterous. I wanted to just do something local, meaningful without wasting anything.” says 38-year old Manju Latha Kalanidhi. “So rice replaced water here.”qz.com
Love #RiceBucketChallenge more than #IceBucketChallenge ! Guys jst stop wasting water and atleast do some thing usefull! get a life people!N!$h@
So are we going to see all these celebs and billionaires taking the #RiceBucketChallenge or they rather splash water and no feed the hungryJoseph Leo Ndlovu
The Stream asked its community, "What ways can people motivate others to provide support for charities?"
@AJStream people should be taught to learn more on developing their conscience and good examples should be displayed by people involved.Mahmoud Muazu Ali
@AJStream celebrities, icons or role models motivate other people 2contribute 2charitable causes. Natural disasters &diseases attract attn.alhaji hamidu chodi
@AJStream by charities being open and openly sharing their belief in the oneness of all humanity.Rahinatu Adamu
What do you think about hashtag activism? How effective do you think it is?
@AJStream Complicated. It's like free market charity where the best marketed charities get the money, not necessarily most needy.A.J.
@AJStream if it works it works, harnessing the power of mass social media is nothing to shame, and the results are amazingJake Peters
@raisazaidi honestly, to be passionate about a cause is to experience illness, injustice, etc. first or second hand, or through education.Zahi Kakish
Do you work for a non-profit organisation? What challenges you face when fundraising?
@AJStream work in nonprofit now, we're lucky as a small office funded by UW, but area we serve is rural, agrarian, poor so little money.Henry Thieken
@AJStream Sacrificing nuance for the sake of sound-bite friendly messaging.Mandy Van Deven
@AJStream i worked with a locl NPO. Donars wants audit of funds and auditing is expensive in a country like pakistanAftab Alam